Olivia Court With A Diagnosis Of Ehlers Danlos Syndrome (EDS):Ehlers-Danlos syndrome (EDS) is a rare genetic disease, which exists when a union of collagen have been unsuccessful. How to collagen decreased elasticity and gravity of the disorder can vary from mild to life threatening. This syndrome is characterized by extreme hyper mobility, which means that the joints rotate every way without any clarity, because how they can bend and when that leads to a permanent location. Olivia Court was born with a severe form of this syndrome, Ehlers-Danlos (EDS), resulting in its connections to the hyper-flexible, according to press the UK.Baby Olivia Court was born with a rare illness which means that the knees and hips painful break every time she tries to play or even walk. Olivia Court 3 years old, suffered a very severe form of the disease, there were two transactions through the thigh and was taken to countless doctors and surgeons, to find a way to help her walk.
In the early 20 th century, Dr. Edward Ehlers of Denmark and Henri-Alexandre Danlos of France have called this state as Ehlers-Danlos syndrome. Hyper mobility exist in different ranges and studies have shown that 1 in every 10000 or 15000 is suffering from a range of hyper-mobility. When you can bend your fingers in different directions, that would be a form of hyper mobility and mild forms of hyper mobility are all around.
Olivia court of last resort syndrome, as she was born without hip sockets at all. Now, Olivia is specifically body suit for 8 hours a day, five days a week, allowing it to strengthen the muscles and thereby helping her to run and play with other children.Olivia spine and joints are supported by enough to prevent dislocation while wearing a revolutionary custom lycra suit. Collagen is the solution, which contains your cells together, and EDS affects the body's ability to create collagen. Ehlers-Danlos Founder Syndrome Network CARES, Inc, Wisconsin, Lynn Sanders, 52 also suffers from a similar type of disorder Olivia, known as hypermobility EDS, that affects the joints and ligaments.
Doctors plan to give Olivia her a new costume every year, and hopes that eventually it will build enough muscle strength to go without a suit. Olivia's parents, Lena, 36, and Adrian, 41 from Leicestershire, thanks to a suit for a new life for her daughter.
Mother Lena said: "Before the suit Olivia will keep falling, it would dislocate joints, and she would just roll over. It was heartbreaking. She was always covered in bruises and regularly miss the crib, because she will suffer from chronic fatigue. But the costume made a world of difference, she can not stop running now, and hips are not dislocated since. She can play as a little girl should have the opportunity. "
Olivia parents hoped the local NHS Trust will pay for the suit, but they refused to finance, as they said that the lack of medical evidence costume really works. Instead, it was paid for by local communities and groups Barwell Earl Shilton Lions Club, who raised the money.
Lena said. "A year ago she could not even stand up without assistance, and now she runs everywhere. It really changed her life."
